Use of MoBa data in consortia

Researchers in ongoing MoBa projects who intend to contribute with aggregated project data or results in national or international consortia, such as meta-analyses, must inform the MoBa administration. 

Below, you will find the terms for using MoBa data in consortia, as well as guidelines on how the MoBa-administration should be informed.

Information about participation in the consortium will be published on our website to inform participants and other MoBa researchers. A list of projects contributing to consortia can be found at the Norwegian site.

Terms for use of MoBa data in consortia

• The analysis of the data (e.g., meta-analysis) must be within the scientific scope of MoBa, the participants' given consent, and the approvals for the contributing research project. The principal investigator (PI) of the MoBa project is responsible for ensuring this and must approve both the analysis and the sharing of aggregated data.
• MoBa data at an aggregated level may be uploaded to a database for analytical purposes, and the results from the analysis may be shared on the consortium's website. However, it is not permitted to upload MoBa data at the individual level to a repository or database at any time.
• MoBa must be acknowledged in articles, and the MoBa reference article should be cited. See MoBa's Guidelines for papers for more information.
• The consortium must be informed that MoBa must be credited when results are used in further secondary analyses.
• A pdf of the published article must be sent to mobaadm@fhi.no.

Summary data from genome wide association studies (GWAS) in MoBa may be made available on the following website: MoBa GWAS summary data.

Send the following information to the MoBa-administration

The MoBa administration requires a brief summary of the participation in the consortium and information about which MoBa project it concerns, as well as a confirmation that the conditions have been assessed and followed. Copy both tables below, fill them in and send them in an email to mobaadm@fhi.no.

Journals requesting access to the research file

This standard text may be used for journals requesting access to the research file:

“The consent given by the MoBa participants does not allow for the storage of individual level data in any repositories or journals. Researchers who request access to MoBa data sets should submit an application through www.helsedata.no. Access to data sets requires approval from The Regional Committee for Medical and Health Research Ethics in Norway and a formal agreement with MoBa.”

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