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Emergency preparedness register for COVID-19 (Beredt C19)
Beredt C19 was established so that the Norwegian Institute of Public Health (NIPH) can quickly obtain the necessary knowledge about the COVID-19 epidemic, enabling the authorities to assess risk and implement measures to safeguard the health of the entire population. The register was established in close collaboration with the Norwegian Directorate of Health, the Norwegian Intensive Care and Pandemic Registry and other data controllers for other data sources included in the register.
Why is there a preparedness register for COVID-19
The national surveillance systems and health registries established before the epidemic collect information to fulfil each register's purpose. However, in order to get a quick and reliable overview of the situation, there is a need to frequently extract and compile data from the various data sources. This provides the Norwegian Institute of Public Health with a relevant, essential knowledge base to deal with the COVID-19 epidemic.
Purpose of Beredt C19
The purpose of Beredt C19 is to provide a rapid overview and knowledge of how the pandemic and implemented measures affect the population's health, use of healthcare services and health-related behaviour.
The information in the register can be analysed and broken down into sub-groups to understand transmission, and to target the measures to reduce the incidence of disease in the population, while reducing the negative effects of the implemented measures.
Data collected from other registers
Beredt C19 includes information that has already been collected in the healthcare service, national health registries and medical quality registers, as well as other administrative registers with information about the Norwegian population. Initially, the register contained data from the Norwegian Surveillance System for Communicable Diseases (MSIS), the Norwegian Patient Registry (NPR) and the Norwegian Intensive Care Unit and Pandemic Registry (NIPaR).
Gradually, the need for data sources has increased, and information has been obtained from several data sources. For an overview of which sources are included, see further down this page. Obtaining new information from new sources will be decided on an ongoing basis where there is a need for analysis and knowledge. Using data that are already registered avoids duplicate reporting and additional work for healthcare personnel and figures from different sources will be matched as closely as possible.
About preparedness registers
In an emergency situation, it is necessary to collect and systematise information about patients to gain an overview of the extent, causes and development of the disease, which can form the basis for measures to meet the situation. The Norwegian Institute of Public Health can establish such preparedness registers, according to the Health Preparedness Act §2-4.
The information collected shall be used by the Norwegian Institute of Public Health, and as the data controller, they shall determine the purpose of the register. The register is temporary, and the information must be deleted or anonymised when the issue has been clarified and evaluated. NIPH employees with access to data can only access information that is necessary to fulfil the various questions that need to be answered. There are strict access control and strict routines for handling information in the register.
The data subjects' right of access to Beredt C19 is safeguarded by the fact that they can contact the data controller for all the sources included in Beredt C19 in the usual way. See links to data sources below.
For NIPH's health registries, you can also contact us in the usual way here. For NIPH’s health registers you can contact via these forms.
Data sources included in Beredt C19
The knowledge needed to protect the lives and health of the population during the pandemic is changing rapidly. Beredt C19 is set up to be able to quickly provide such decision-making knowledge, and therefore several pieces of information are included, and new sources are planned.
In order for the authorities to be able to form a comprehensive overview and knowledge of the prevalence of the COVID-19 pandemic and the possible effects of the measures, it is important to form an opinion about what would have happened in the absence of the epidemic or of one or more measures. Comparisons with similar groups from previous years will therefore be essential. Therefore both daily updated and historical data are collected.
Norwegian Surveillance System for Communicable Diseases (MSIS)
MSIS is a national health registry. Beredt C19 obtains daily information from MSIS about positive COVID-19 cases and information such as age, gender, place of infection and country of birth. Registered individuals have the right to access their own health information and will be able to contact MSIS about this in the usual way.
On the fhi.no website you will find information about MSIS, the purpose of the register and what information is registered, as well as information about the right to access your own health information.
Norwegian Patient Registry (NPR)
Data from hospitals are obtained using the infrastructure of the Norwegian Patient Registry (NPR), one of the national health registries. On the Norwegian Directorate of Health's website, you will find information about the purpose of the registry and the information registered. With the help of NPR's infrastructure, information about admissions is collected from all reporting units in the specialist healthcare service from 1 January 2020 onwards. Data are collected and updated daily. From October 2020, historical data are also collected, to begin with from 2017-2019. The registered person has the right to access their own health information by contacting NPR.
Norwegian Intensive Care and Pandemic Registry (NIPaR)
On Helse Bergen's website, you will be able to read about the purpose of the register and find information about what is registered for the intensive care unit and the pandemic unit, respectively, as well as information about the right to access your own health information. Beredt C19 obtains information from two of NIPaR's data collections: the Norwegian intensive care registry's preparedness form for COVID-19 and the Norwegian pandemic registry.
From the former, data will be collected from 10 March 2020 onwards. Data have been collected from the Norwegian Pandemic Register since the register was put into operation on 31 March 2020 and onwards. However, it also includes post-registrations from the start of the outbreak in 2020.
The Norwegian Institute of Public Health requires information including occupation and place of work to study transmission and disease, consequences of the pandemic and measures within different occupational groups. Information from the State Register of Employers and Employees (Aa register) was collected from the Norwegian Labour and Welfare Administration (NAV).
The Aa register is a basic data register that provides an overview of all working conditions in Norway. Public authorities that need information from the Aa register to solve their tasks (as a public authority), can access data from here. The data are transferred as a single delivery, but will be updated as required. For information about the Aa register and access to information at NAV:
National Population Register
Since October 2020, Beredt C19 collects information from the National Population Register. Information collected includes date of birth, gender, basic statistical unit, residential municipality, school district, place of birth (municipality / country), marital status, information about date/place of death and family relationships. The latter will be collected in order to be able to study transmission in families.
Norwegian Registry of Primary Health Care (KPR)
Information is obtained from KPR to get an overview of how the pandemic, implemented measures and eventually vaccination, affect the population's use of healthcare services and their health. This will also provide information about transmission, and eventually vaccination, in nursing homes. KPR contains data from the municipalities about people who have applied for, receive or have received health and care services.
From KPR, daily data from the Directorate of Health’s KUHR database (Control and Payment of Health Reimbursements) will be added to Beredt C19, as well as historical data from both KUHR and the Directorate of Health’s IPSOS-register (Norwegian Information System for the Nursing and Care Sector). In order to study infection and vaccination in nursing homes, work is onging to obtain more frequent updates of information in KPR.
MSIS Laboratory Database
In connection with the COVID-19 pandemic, the NIPH established a national laboratory database. Beredt C19 includes information about samples and analysis results for influenza (virus) and COVID-19 (both virus and antibodies). For information about access to NIPH's health registries, read more below:
Norwegian Immunisation Registry SYSVAK
By obtaining information from SYSVAK, the NIPH will be able to gain the necessary knowledge to plan vaccination against COVID-19. Furthermore, it is important to monitor vaccination coverage and study the effect of the vaccine in different groups of the population, as well as possible side effects. Parts of this work take place in collaboration with the Norwegian Medicines Agency. The NIPH is data controller for SYSVAK. For more information about SYSVAK and access to your own information, read more here:
Medical Birth Registry of Norway
It is planned to obtain data from the Medical Birth Registry (MFR) to study the effects in pregnant women - both of COVID-19 and vaccination, as well as other effects on pregnant women and births resulting from the measures against the pandemic. More information about MFR can be found here:
Cause of Death Registry
Information from the Cause of Death Register (DÅR) is obtained in Beredt C19, both historical and current data. DÅR contains information about causes of death in Norway. With information from DÅR, we will be able to study death after COVID-19 in different groups of the population, and any other consequences of the measures on general mortality in Norway.
Register of adverse events after vaccination reported by a healthcare professional (BIVAK)
BIVAK contains information about suspected vaccine side effects reported by healthcare professionals. In order to be able to monitor side effects after vaccination against COVID-19, information will be obtained from BIVAK. Information will be collected from February 2021. NIPH is data controller for BIVAK, which you can read more about here:
Adverse Events Register
The Adverse Events Register contains reports of suspected side effects of medicines from healthcare professionals, patients and their relatives in Norway. In order to be able to monitor the occurrence of side effects of vaccination reported by patients and relatives, and other side effects of, for example, COVID-19 treatment, Beredt C19 will also have information from the Adverse Events Register. The data were incorporated in Beredt C19 from February 2021. The Norwegian Medicines Agency is the data controller for the register.
- Adverse Events Register (Legemiddelverket)
Statistics Norway (SSB)
COVID-19 disease affects different groups in the population. In order to obtain knowledge about what characterises individuals, households and families with high infection, severe disease course, death and testing (income, employment status, education / living conditions, etc.), information is obtained from Statistics Norway. Furthermore, it is important to obtain knowledge about how the pandemic and the measures against it affect different parts of the population, such as sick leave and social security use, employment / redundancy and unemployment, and what effect such conditions have on testing, transmission, health care use and vaccination.
Data from Statistics Norway were first obtained in February 2021. It is also important to obtain knowledge about whether different groups have vaccines, and whether the vaccines have the desired effect on severe COVID-19 and death in these groups.
Directorate for Civil Protection and Emergency Planning (DSB)
In order to assess the effect of the national measures and measures related to border crossing, it is important to be able to know who has crossed the border, and thus be able to distinguish between people infected abroad and people infected in Norway. From February 2021, information about border crossings will therefore be obtained from DSB's entry registration system. More information can be found here.
Contact tracing data from municipal digital contact tracing systems
There is a need for a national overview of COVID-19 and to be able to map where transmission occurs in society. In order to contribute to better knowledge about this, the Norwegian Institute of Public Health wishes to obtain information from the contact tracing work in the municipalities. The information will be used in analyses to generate more knowledge about the management of infection situations locally. The information collected locally about contact tracing will, alone and compiled with other data sources in Beredt C19, be used to fulfil the purpose of the register - and NIPH's responsibility in accordance with the Infection Control Act.