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Emergency preparedness register for COVID-19 (Beredt C19)
Beredt C19 was established so that the Norwegian Institute of Public Health (NIPH) can quickly obtain the necessary knowledge about the COVID-19 epidemic, enabling the authorities to assess risk and implement measures to safeguard the health of the entire population. The register was established in close collaboration with the Norwegian Directorate of Health, the Norwegian Intensive Care and Pandemic Registry and other data controllers for other data sources included in the register.
Why is there a preparedness register for COVID-19
The national surveillance systems and health registries established before the epidemic collect information to fulfil each register's purpose. However, in order to get a quick and reliable overview of the situation, there is a need to frequently extract and compile data from the various data sources. This provides the Norwegian Institute of Public Health with a relevant, essential knowledge base to deal with the COVID-19 epidemic.
Purpose of Beredt C19
The purpose of Beredt C19 is to provide a rapid overview and knowledge of how the pandemic and implemented measures affect the population's health, use of healthcare services and health-related behaviour.
The information in the register can be analysed and broken down into sub-groups to understand transmission, and to target the measures to reduce the incidence of disease in the population, while reducing the negative effects of the implemented measures.
Data collected from other registers
Beredt C19 includes information that has already been collected in the healthcare service, national health registries and medical quality registers, as well as other administrative registers with information about the Norwegian population. Initially, the register contained data from the Norwegian Surveillance System for Communicable Diseases (MSIS), the Norwegian Patient Registry (NPR) and the Norwegian Intensive Care Unit and Pandemic Registry (NIPaR).
Gradually, the need for data sources has increased, and information has been obtained from several data sources. For an overview of which sources are included, see further down this page. Obtaining new information from new sources will be decided on an ongoing basis where there is a need for analysis and knowledge. Using data that are already registered avoids duplicate reporting and additional work for healthcare personnel and figures from different sources will be matched as closely as possible.
About preparedness registers
In an emergency situation, it is necessary to collect and systematise information about patients to gain an overview of the extent, causes and development of the disease, which can form the basis for measures to meet the situation. The Norwegian Institute of Public Health can establish such preparedness registers, according to the Health Preparedness Act §2-4.
The information collected shall be used by the Norwegian Institute of Public Health, and as the data controller, they shall determine the purpose of the register. The register is temporary, and the information must be deleted or anonymised when the issue has been clarified and evaluated. NIPH employees with access to data can only access information that is necessary to fulfil the various questions that need to be answered. There are strict access control and strict routines for handling information in the register.
The data subjects' right of access to Beredt C19 is safeguarded by the fact that they can contact the data controller for all the sources included in Beredt C19 in the usual way. See links to data sources below.
For NIPH's health registries, you can also contact us in the usual way here. For NIPH’s health registers you can contact via these forms.
Data sources included in Beredt C19
The knowledge needed to protect the lives and health of the population during the pandemic is changing rapidly. Beredt C19 is set up to be able to quickly provide such decision-making knowledge, and therefore several pieces of information are included, and new sources are planned.
In order for the authorities to be able to form a comprehensive overview and knowledge of the prevalence of the COVID-19 pandemic and the possible effects of the measures, it is important to form an opinion about what would have happened in the absence of the epidemic or of one or more measures. Comparisons with similar groups from previous years will therefore be essential. Therefore both daily updated and historical data are collected.
Norwegian Surveillance System for Communicable Diseases (MSIS)
MSIS is a national health registry. Beredt C19 obtains daily information from MSIS about positive COVID-19 cases and information such as age, gender, place of infection and country of birth. Registered individuals have the right to access their own health information and will be able to contact MSIS about this in the usual way.
On the fhi.no website you will find information about MSIS, the purpose of the register and what information is registered, as well as information about the right to access your own health information.
Norwegian Patient Registry (NPR)
Data from hospitals are obtained using the infrastructure of the Norwegian Patient Registry (NPR), one of the national health registries. On the Norwegian Directorate of Health's website, you will find information about the purpose of the registry and the information registered. With the help of NPR's infrastructure, information about admissions is collected from all reporting units in the specialist healthcare service from 1 January 2020 onwards. Data are collected and updated daily. The registered person has the right to access their own health information by contacting NPR.
Norwegian Intensive Care and Pandemic Registry (NIPaR)
On Helse Bergen's website, you will be able to read about the purpose of the register and find information about what is registered for the intensive care unit and the pandemic unit, respectively, as well as information about the right to access your own health information. Beredt C19 obtains information from two of NIPaR's data collections: the Norwegian intensive care registry's preparedness form for COVID-19 and the Norwegian pandemic registry.
From the former, data will be collected from 10 March 2020 onwards. Data have been collected from the Norwegian Pandemic Register since the register was put into operation on 31 March 2020 and onwards. However, it also includes post-registrations from the start of the outbreak in 2020.
The Norwegian Institute of Public Health requires information including occupation and place of work to study transmission and disease, consequences of the pandemic and measures within different occupational groups. Information from the State Register of Employers and Employees (Aa register) was collected in August 2020.
The Aa register is owned and managed by Norwegian Labour and Welfare Administration (NAV) and is a basic data register that provides an overview of all working conditions in Norway. Public authorities that need information from the Aa register to solve their tasks (as a public authority), can access data from here The data are transferred as a single delivery, but will be updated as required. For information about the Aa register and access to information at NAV:
National Population Register
Since October 2020, Beredt C19 collects information from the National Population Register. Initially, non-confidential information is collected in Beredt C19, according to the Population Register Act. This includes date of birth, gender, basic statistical unit, residential municipality, school district, place of birth (municipality / country), marital status and information about date/place of death. Efforts are being made to clarify the legal basis to also obtain confidential information, for example about family relationships, in order to be able to study transmission in families.
Norwegian Registry of Primary Health Care (KPR)
Information is obtained from KPR to get an overview of how the pandemic, implemented measures and eventually vaccination, affect the population's use of healthcare services and their health. This will also provide information about transmission, and eventually vaccination, in nursing homes. KPR contains data from the municipalities about people who have applied for, receive or have received health and care services.
From KPR, daily data from the Directorate of Health’s KUHR database (Control and Payment of Health Reimbursements) will be added to Beredt C19, as well as historical data from both KUHR and the Directorate of Health’s IPSOS-register (Norwegian Information System for the Nursing and Care Sector) that has data from the years 2017–2019).
MSIS Laboratory Database
In connection with the COVID-19 pandemic, the NIPH established a national laboratory database. Beredt C19 includes information about samples and analysis results for influenza (virus) and COVID-19 (both virus and antibodies). For information about access to NIPH's health registries, read more below:
Norwegian Immunisation Registry SYSVAK
By obtaining information from SYSVAK, the NIPH will be able to gain the necessary knowledge to plan vaccination against COVID-19. Furthermore, it is important to monitor vaccination coverage and study the effect of the vaccine in different groups of the population, as well as possible side effects. Parts of this work take place in collaboration with the Norwegian Medicines Agency. The NIPH is data controller for SYSVAK. For more information about SYSVAK and access to your own information, read more here:
Medical Birth Registry of Norway
It is planned to obtain data from the Medical Birth Registry (MFR) to study the effects in pregnant women - both of COVID-19 and vaccination, as well as other effects on pregnant women and births resulting from the measures against the pandemic. More information about MFR can be found here:
Cause of Death Registry
Information from the Cause of Death Register (DÅR) is obtained in Beredt C19, both historical and current data (from 2020/2021). DÅR contains information about causes of death in Norway. With information from DÅR, we will be able to study death after COVID-19 in different groups of the population, and any other consequences of the measures on general mortality in Norway.
Further plans for data sources in Beredt C19
Register of adverse events after vaccination reported by a healthcare professional (BIVAK)
BIVAK contains information about suspected vaccine side effects reported by healthcare professionals, from 2007 until today. In order to be able to monitor side effects after vaccination against COVID-19, information will be obtained from BIVAK. NIPH is data controller for BIVAK, which you can read more about here:
Adverse Events Register
The Adverse Events Register contains reports of suspected side effects of medicines from healthcare professionals, patients and their relatives in Norway. In order to be able to monitor the occurrence of side effects of vaccination reported by patients and relatives, and other side effects of, for example, COVID-19 treatment, Beredt19 will also have information from the Adverse Events Register. The Norwegian Medicines Agency is the data controller for the register.
- Adverse Events Register (Legemiddelverket)
NAV's institutional register - information about residents in nursing and retirement homes
It is important to get a quick overview of transmission among residents in nursing homes, as outbreaks can lead to many residents becoming seriously ill with high mortality. In order to be able to monitor, and hopefully prevent, outbreaks in nursing homes, we are working to obtain data on nursing home residents from the Norwegian Labour and Welfare Administration (NAV).
Information about sick leave from NAV
In order for the authorities to be able to assess risk and implement measures to ensure the health of the entire population, it is important to gain an overview of how sick leave is affected by the pandemic, both for those who have had COVID-19 and for other groups affected by the measures against the pandemic. Information that is needed is sick leave certified by a doctor and possibly also sick leave with reimbursement in accordance with the National Insurance Act. This data will be retrieved from NAV. There will be a need to follow developments closely in the future, and there will be a need for frequent updates of data from NAV.
Contact tracing data from municipal digital contact tracing systems
There is a need for a national overview of COVID-19 and to be able to map where transmission occurs in society. In order to contribute to better knowledge about this, the Norwegian Institute of Public Health wishes to obtain information from the contact tracing work in the municipalities. The information will be used in analyses to generate more knowledge about the management of infection situations locally. The information collected locally about contact tracing will, alone and compiled with other data sources in Beredt C19, be used to fulfil the purpose of the register - and NIPH's responsibility in accordance with the Infection Control Act.