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About the Registry of Pregnancy Termination
Hospitals that perform abortions must report information about processed requests for pregnancy termination to the Registry of Pregnancy Termination which is maintained by the Department of Medical Birth Registry at the Norwegian Institute of Public Health (NIPH). Submission of information must follow defined procedures and deadlines and be in a format defined by the NIPH.
Since 2006, the NIPH has managed the Registry of Pregnancy Termination and is the data controller. Collection and processing of health information about the terminations in the registry are determined in the Registry of Pregnancy Termination Regulations.
What is reported to the Registry of Pregnancy Termination?
Examples of information reported to the Registry of Pregnancy Termination include the woman's date of birth, marital status, social security municipality, education, previous pregnancies, pregnancy duration, contraceptive use and the hospital's treatment of the request. In addition, medical information about the procedure and any complications are reported. Information about smoking habits can only be obtained if the woman does not object.
For Committee-handled abortions (after 12 weeks gestation), the social security number is also reported, along with information about the Committee’s decision. For applications for termination according to the Abortion Act § 2, 3rd paragraph, letter c, information about prenatal diagnosis is also required.
Reporting of abortions
Hospitals and institutions that perform abortions are responsible for reporting certain information about pregnancy termination and treatment of the woman's request. The information must be reported to the Registry of Pregnancy Termination at the Department of Medical Birth Registry at the NIPH.
Notifications about abortions are submitted electronically via the health institution's own website. Notifications are sent continuously and no later than one week after treatment. Only one notification is sent per case.
The Registry of Pregnancy Termination is anonymised. Personally-identifiable information will only be recorded in the Medical Birth Registry for committee-handled abortions according to the Abortion Act § 2, 3 c, i.e. termination due to a major risk that the foetus may suffer from a serious disease as a result of its genotype, or disease or harmful influences during pregnancy.
Information about other Committee-handled abortion is anonymised, meaning that personally- identifiable characteristics such as name, address and social security number are deleted before the information is recorded in the Registry of Pregnancy Termination.
Information in the registry is stored indefinitely, unless otherwise specified by the registry’s regulations or the Health Register Regulations. The case number, hospital name, day and month of birth should be deleted within ten years of registration.
Statistical information that is published or distributed must not be in a form in which the individual or institution that has performed the procedure can be identified. Data from the Registry of Pregnancy Termination is only released if the necessary permits are granted or disclosure is pursuant to the registry’s regulations.