The objective of this study was to identify a set of eight to ten core questions about patient experiences with specialised health care.
Based on previous research, we selected 24 questions about patient experiences with potential relevance for nine different patient groups.
Patients, or their guardians in case of minors, were asked to rate their experiences as well as the importance of each question.
Seven groups of patients were contacted by mail; two groups were contacted in person.
Criteria for selection of core questions were:
- Low prevalence ( < 20 %) of “Not applicable”-responses
- High mean importance score across the nine respondent groups
- Not more than two questions about the same patient experiences domain (to secure comprehensiveness)
Following the criteria we identified ten core questions applicable for all patient groups. In addition, we identified one to three important supplemental questions for each of the nine groups.