Norwegian Lung Cancer Registry
Article
|Last update
The number of lung cancers stands at well over 3,000 new cases annually. As a result of better treatment, the proportion living with a diagnosis of lung cancer today is three times as large as it was 20 years ago.
Being updated
The 2023 annual report shows several figures looking at the incidence of lung cancer in the population. Results show that the incidence is both declining and has become quite similar among women and men. Among the oldest there is a levelling off in the incidence and men over 70 years still have a higher incidence than women.
Since 1993, the Cancer Registry of Norway has registered extended information for those who have undergone surgery for lung cancer. In 2013, the Norwegian Lung Cancer Registry was granted national status and collected information on all cases of lung cancer and tracheal cancer. The registry is to contribute to strengthen the quality of the health care provided to patients with lung cancer. The registry shall also conduct, promote and provide a basis for research to develop new knowledge about the causes, diagnosis and course of cancer, as well as treatment effects. The Cancer Registry of Norway is responsible for databehan- dlings.
Reporting to the registry
Registration of clinical information to the Norwegian Lung Cancer Registry is done electronically via KREMT on the Norwegian Health Network. KREMT includes functionalities for making the reporting easier.
Reminders for missing messages and receipts for submitted messages are available in the KREMT portal. It is also possible to cache forms.
To encourage reporting, administrative and clinical statistics have been compiled that provide hospitals with updated results for their unit. These statistics are updated daily.
Degree of coverage and data quality
Patient group
The registry contains detailed information on all cases of lung cancer (ICD10: C34) and trachea cancer (C33). This includes information from assessment, treatment and follow-up of this patient group.
In 2015, a patient pathway for lung cancer was introduced. The purpose of the patient pathway is to ensure an effective course from receipt of the referral from the pulmonary specialist in the specialist health service, to the start of treatment or completion of the patient pathway. The course times are reported from the hospitals to the Norwegian Patient Registry (NPR), which publishes national figures annually.
Levels of care
Lung cancer patients are assessed, treated and followed up in both the primary health service and the specialist health service. All doctors who provide health care to patients with lung cancer are obliged to report to the Cancer Registry, which includes the Norwegian Lung Cancer Registry.