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  • Rare diagnoses pilot study

Project

Rare diagnoses pilot study - project description

Published

The purpose of this study is to map the occurrence and course of illness of rare diagnoses (<1:10000).


Summary

The study is based on data from the Norwegian Patient Registry and the Norwegian Mother and Child Cohort Study (MoBa). If this pilot study provides useful information, an expansion of the study to include all rare diseases with an occurrence of <1:10000 will follow.

Project number

2307

Start

2017

Status

Active

Approvals

Regional Committees for Medical and Health Research Ethics

Project owner/ Project manager

Oslo University Hospital

Project manager