Rare diagnoses pilot study
Project
|Published
The purpose of this study is to map the occurrence and course of illness of rare diagnoses (<1:10000) based on data from the Norwegian Patient Registry and the Norwegian Mother and Child Cohort Study (MoBa).
Summary
If this pilot study provides useful information, an expansion of the study to include all rare diseases with an occurrence of <1:10000 will follow.
Project number
2307
Start
2017
Status
Active
Approvals
Regional Committees for Medical and Health Research Ethics (REC)
Project owner/ Project manager
Oslo University Hospital – Ullevaal