Norwegian Pancreatic Cancer Registry
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The majority of patients with pancreatic cancer can not undergo surgery either because of metastasis, locally advanced disease or high age. For those who have undergone surgery, survival has increased.
Being updated
In December 2019, the Norwegian Cancer Society gave money to develop and operate a clinical registry for pancreatic cancer, with a framework of three years. The project period has now been extended to June 2024. This is the third edition of the annual report for pancreatic cancer. (Norwegian only)
The Norwegian Pancreatic Cancer Registry shall contribute to strengthening the quality of health care for patients with pancreatic cancer. The registry shall also conduct, promote and provide a basis for research to develop new knowledge about the causes, course of the disease and the effect of the treatment provided.
From 1990 until 2023, there has been a stable incidence of pancreatic cancer in Norway for both sexes. 968 patients were diagnosed with pancreatic cancer in 2023. Of these, 90 were identified with neuroendocrine neoplasms and are not included in the register. The annual report includes patients with pancreatic adenocarcinoma.
Assessment of pancreatic cancer is performed locally, and pancreatic cancer surgery is centralised to Oslo University Hospital, Stavanger Unitersity Hospital, Haukeland University Hospital, St. Olav Hospital and UNN Tromsø.
In recent years, the Cancer Registry of Norway (CRN) has obtained information on drug treatment given in hospitals, updated available data regarding chemotherapy (type, date, dose). This year it has been particularly valuable to watch the use and distribution of adjuvant chemotherapy, where variation probably reflects slightly different interpretations of the National Guidelines, which has provided valuable information to the professionals revising the guidelines.
More about pancreatic cancer on kreftregisteret.no
Information about pancreatic cancer on the Cancer Society's website.
Reporting to the registry
Registration of clinical information to the Norwegian Pancreatic Cancer Registry is done electronically via KREMT on the Norwegian Health Network. KREMT includes functionalities for making the reporting easier.
Reminders for missing messages and receipts for submitted messages are available in the KREMT portal. It is also possible to cache forms.
To encourage reporting, administrative and clinical statistics have been compiled that provide hospitals with updated results for their unit. These statistics are updated daily.
Degree of coverage and data quality
Patient group
The registry contains detailed information on all cases of pancreatic cancer and information from the assessment, treatment and follow-up of this patient group.
Pancreatic cancer is treated with surgery, chemotherapy and in few cases radiation therapy.
Levels of care
Patients with pancreatic cancer are assessed, treated and followed up by both the primary health service and the specialist health service. All doctors who provide health care to this patient group are obliged to report to the Cancer Registry, which includes the Norwegian Pancreatic Cancer Registry.