Degree of coverage and data quality
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Degree of coverage and completeness
All patients with ovarian and cervical cancer in Norway must be included in the registry.
All doctors who provide health care to patients with cancer are obliged to report to the Cancer Registry of Norway (CRN). This includes reporting to the National Quality Registry for Gynecological Cancer.
Data are collected from all the country's hospitals. Treatment for ovarian cancer is centralised at the hospitals OUS Radium Hospital, St. Olavs Hospital, Haukeland University Hospital, UNN in Tromsø and Stavanger University Hospital. These account for most of the data reported to the register.
The professional council in the register has representatives from all hospitals with special expertise in gynecological oncology. These act as contact persons in the departments and are regularly updated on the status of registration at professional council meetings and via e-mail from the Cancer Registry.
For 2023, the reporting rate for assessment reports for ovarian cancer was 90.0 %. The reporting rate on the surgery notification has also remained stable and good and is 95.0%. Both messages thus achieve a high level of coverage (≥80 %).
This year's report is the fourth report to present results for cervical cancer. With ever-increasing enrollment and data quality, we have annually expanded with new analyzes and new quality indicators. The coverage rate for assessment reports for cervical cancer for the whole country in 2023 is 86.6 %. All the hospitals achieve a high level of target attainment in 2023.
The coverage rate for surgical notification for cervical cancer is 65.1 % for the whole country in 2023. Only moderate target achievement is thus achieved.
Analyzes regarding the degree of coverage per hospital are shown in the annual report.
Data quality
The data quality for the entire group of patients with ovarian cancer is considered to be very good because the Cancer Registry of Norway makes a specific assessment of all pathology results from the laboratories.
Quality assurance of data is done as an integral part of the coding and registration process. In addition, the following examples help to ensure data quality in the Cancer Registry:
- Several independent sources report information
- The information is reported at several points in the course of the disease
- The completeness of the quality register is calculated and assessed through annual coverage rate analyses
- The Cancer Registry's employees have unique expertise in coding cancer cases in accordance with the Cancer Registry's own code book and international coding systems
- IT systems have rules and barriers for illogical combinations, incorrect information and more
- The Cancer Registry of Norway conducts analyses and control runs that reveal inconsistency in the data
- Data extraction for researchers makes it possible to check a smaller data set of information that can reveal individual errors (e.g. incorrect entry of hospital codes) or systematic differences due to different interpretations of coding systems and rules
- The quality registry annually performs a validity analysis where information on radiation therapy and drug cancer treatment registered in the Cancer Registry is compared with information on radiation therapy and drug cancer treatment registered in the Norwegian Patient Registry