Regional Ethics Committee approval required for access to MoBa data
The Norwegian Institute of Public Health is changing the practice for accessing data files from the Norwegian Mother and Child Cohort Study (MoBa). This means that all researchers who want to access data from MoBa must submit a project specific approval from the Regional Committee for Medical and Health Research Ethics (REC-approval) before questionnaire data can be released.
The reason why this step is being taken is that rapid technological development and the growing amount of data available on the internet increases the risk of person identification.
The Norwegian Institute of Public Health will inform researchers who have received anonymous MoBa files that the altered practice will also apply for the delivery of updated files in ongoing projects.
Information about the Norwegian Mother and Child Cohort Study that may be useful for REC applications: